11/30/2022 0 Comments Cataplexy in hands![]() ![]() These measures are being used in a Phase III, placebo-controlled clinical trial of sodium oxybate in children and adolescents with narcolepsy.Īdolescents assessment cataplexy children narcolepsy sleepiness. Further psychometric validation is recommended. The cataplexy diary and ESS-CHAD were modified for the assessment of children and adolescents. Two ESS-CHAD versions were proposed: one with a 1-month recall period, for general use, and the other with a recall period of "since your last study visit," for research, which could be shorter or longer than 1 month (as short as 1 week). Modifications were made to ESS-CHAD for child-friendly wording and to ensure that items reflect activities (eating, watching TV/video) and environments (school, bus/car transport) in which children are likely to participate. I'm 26 and though mine is the worst when laughing hard, I find that there are times it just happens when i'm angry or sad. Cataplexy diary modifications included changes in definitions and examples of cataplexy, using child-friendly terminology, adding a quantitative question to determine daily frequency, and standardizing the questionnaire for evening administration with self-completion by the child. 'Cataplexy is a sudden and transient episode of loss of muscle tone, often triggered by emotions.' Helpful - 0 Comment Phoenixglaid I've have the same problem for as long as I can remember. ![]() Similarities and differences were noted between narcolepsy concepts described by children and their parents/caregivers, suggesting some different but complementary perspectives parents may not recognize cataplexy symptoms/triggers as well as children, but parents have greater recognition of the circumstances of falling asleep. This weakness can affect your entire body, or only certain. The aim of this study was to qualitatively evaluate concepts for incorporation into a daily diary to capture cataplexy frequency and to assess the content validity of the Epworth Sleepiness Scale for Children and Adolescents (ESS-CHAD) in pediatric patients with narcolepsy.įace-to-face concept elicitation and cognitive interviews were conducted with children (7-9 years n=13) and adolescents (10-17 years n=16) who have narcolepsy with cataplexy, and their parents/caregivers. Cataplexy sufferers will find that they lose muscle tone and experience muscle weakness while awake. ![]()
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